Daddy, Uncle Austin & Amelia
Here is the quick and short of things that have changed since Monday. They decided NOT to treat the heart murmur. Monday night they compared the two echo's and realized that the hole was much smaller then last week. So they are just going to let it go for now. She also decided yesterday that she didn't want to eat anymore, so after she had pulled out her tube that goes into her tummy TWICE (feisty little thing), they did an Xray and saw she had lots of little air bubbles in her tummy and in her intestines which made it impossible for anything to move thru. So back on antibiotics she went while they wait for cultures to come back to make sure she doesn't have any infections from her tummy and have been holding her feeds again.
Her Brady's (when her heart rate drops rapidly into the low 80 and lower) have also returned and they have been alot more sever, so she was too unstable to kangaroo yesterday too. Sad for mommy and daddy. It was a rough day for us yesterday. Kangarooing is our time together to bond and fall in love. And with the roller coaster of things going on yesterday and then not being able to hold her, it just was another one of those non progress days.
We spoke to our priest the other day and he suggested we have her baptised in the hospital mainly because of her length of stay in the nicu. It's not exactly the baptism I was thinking of, but then again NONE of this has been. We are hoping she is stable enough to take her out to be able to hold her, but if not, we can just do it in her little isolette. We pretty much roll with the punches and she calls the shots!
2 comments:
Good morning little Amelia, I'm sorry I haven't written in quite some time and I am so sorry I haven't seen you in almost 2 weeks. What a horrible auntie I am! Uncle Austin went to see you a week ago and he couldn't believe how great you were doing! He is so proud of you, as I am also. We love you so much and we can't wait till you come home. I helped your grandma with your baptism dress...you are going to look like an angel in that! I am so sad that no more than your parents and grandparents can come to your baptism but we will be thinking and praying for you and with them while it is taking place. We pray for you every night...we miss you and we hope we can come see you sometime this weekend. We love you Amelia Bedelia! Love, Uncle Austi & Auntie Rebecca.
hey aleena and mike!
i look forward to reading amelia's blog every day, you do such a wonderful job with it (well, more aleena then mike, he he he) thank you so much for taking the time to keep all of your loved ones updated on little miss amelia. she is so beautiful (she totally looks like a hetzel girl!!) i hope to be able to come and visit again soon. till then, your family is constantly in my thoughts and my prayers, i think about all of you every day. you are wonderful parents and amelia is so blessed to have become apart of your family. much love, hugs and kisses!
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